DID and Complex PTSD no treatment available.

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cogitater
Posts: 1
Joined: Tue Oct 23, 2012 1:53 pm
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by cogitater on Tue Oct 23, 2012 3:04 pm

DID and Complex PTSD no treatment available.

Where do adult survivors get real proper professional treatment? I

I have been round the block trying to get professional help, been chewed up and spat out very firmly..being intelligent and being able to ask questions didn't help my case:-0 I now at least understand the system a bit better I guess but it has caused me considerable pain in the finding out. I went to my local CMHT via GP when I knew I was really not well and was truly scared about how I was feeling..I was turned down, this happened 4 times by then feeling suicidal and then told ring the Samaritans we don't deal with suicide..like another poster I have found that number something of a Russian roulette and not really very good.
Eventually via PALS it was agreed I should have been taken on by the team they were sorry and 'can you just hang on dear and don't commit suicide whilst we get the support you need sorted out, you are very brave to have come back to us and we will all move forward now' and I would regain access to Clinical Psychologist, (i had been seeing one after 2 year wait but sadly they got cancer and died so i was then automatically signed off by CMHT) Unfortunately that involved my 6th assessment in 2 years and this one was so in depth and so detailed being in an already highly aroused state I was really struggling..9 hours in and I couldn't take any more. Catch 22 alledegly stabalising would have been offered if i had completed the assessment..I couldn't even get info on what treatment I might be offered if I did stick with the assessement ..I think it might have been Schema Therapy which may not be very good for DID? Did the CMHT step in what do you think? no they eventually wrote weeks after would I like to contact them?

My GP bailed at that time. I found more information about trauma and PTSD, complex PTSD got myself tested for Dissociation I didn't even know this is what I had been doing all my life and been working with Somatherapy for myself since. I am making progress but it is very very tough ..the experience with Psychological services and CMHT really traumatised me and affected my view of the NHS as a whole I couldn't even get to routine screening which i had never missed in my whole life before. I have no social contact at all.Where do adult survivors get real proper professional treatment? I

I am ready now to work on the DID but I want to work with someone who really understands trauma and has had proper experience with DID.
The voluntary resources locally cover abuse but not DID and have taken me as far as they can.
Local Mind can't even offer me emotional support as they feel I am too vunerable.
I changed to another GP in the practice after my then GP said they could not discuss my MH any further with me, they couldn't recommend anyonelse with more knowledge in the practice. I changed to someone who perhaps listens a bit better but really doesn't have any solid knowledge on MH as far as I can see which I found fairly distressing, I finally braved the GP again after a year to be told I would be lucky to find a specialist in an urban area..so you seem to be managing on your own best to leave it at that..I had gone in because I know I have to break my reliance on social isolation..
Where do adult survivors get real proper professional treatment? I

This person is the main commissioner for my area in new CG's?
I don't understand why services are so patchy and accessing them is soo difficult. I don't understand why MInd even writes this in their brochure on Dissociation..for me that justs gives GP's like mine excuse not to provide or look into providing services.

I know from the information that DID is treatable is in fact one of the more treatable MH conditions.

Yet i have now been labelled as 'untreatable' it would be easier to hear that if i was terminal with cancer than for a condition which is treatable. For me it is just re-inforcing the earlier abuse.

I don't understand why in 2012 the Samaritans is seen as the main source of help if you are feeling Suicidal..for me I mistakenly thought that was where GP and CMHT would lead me into and support me in accessing the appropriate help..I can honestly say that i have not been treated by any other part of the NHS in the way i was by those dealing with MH..compassion, reassurance absolutely no sign.

I know now that a treatment pathway, or NICE guidelines don't even exist for DID so it isn't my fault, which i was really beginning to believe.
I do know that Nice guidelines do exist for how to treat anyone accessing MH services for service providers to follow ..even if those guidelines had been followed my experience could have been hugely different and nowhere near as traumatic but for some reason those guidelines are ones that were never printed only have a PDF link?

We are now facing a huge situation with the Saville inquirys this has really stirred things up again for me so i ask again
b]Where do adult survivors get real proper professional treatment? I[/b]
maybe the lack of recognition of DID is part of that whole picture of why something like this can happen?

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Annette Boden - Counsellor
Posts: 20
Joined: Fri Oct 12, 2012 10:20 am
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by Annette Boden - Counsellor on Thu Oct 25, 2012 11:16 am

Re: DID and Complex PTSD no treatment available.

I am sorry you are suffering and it appears you have not been able to access the right treatment for you. There is treatment available but it is a question of what is available in your area. In the first instance I can recommend a book "Recovering from Trauma using compassion focused therapy" This is a well researched CBT based approach that developed from research undertaken by professor Paul Gilbert OBE at Derby University. You may find some helpful links/contacts to find out more on the Compassionate mind foundation website by emailing a contact from there to see what may be available in your area. Dr Deborah Lee- the author of the book has been working in the field of PTSD for over 20 years.

I know it is only a start but from here you may be pointed in the right direction.

I hope that helps.
Annette Boden - Hypnotherapist, psychotherapist, Counsellor
MSc, BSc(Hons)Psychology, MBPsS, FNSHP, ADHP (NC) Adv.Dip THP (N-SHAP), Adv.Dip (NCHP), Member: CRAH; HA; HCB. UKCP registered hypno-psychotherapist. CNHC registered Hypnotherapist.

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