Pompholyx Eczema

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Jinxyjuja
Posts: 1
Joined: Tue Apr 24, 2018 10:24 pm
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by Jinxyjuja on Tue Apr 24, 2018 10:35 pm

Pompholyx Eczema

I have newly been diagnosed with Pompholyx eczema and I have got my hands under control with O'Keefes however it was always just a single toe that gives me so much trouble.
I am waiting to see a dermatologist as my GP is at a loss as to what else to prescribe me at the generic Betnovate just isnt touching these nasty very painful blisters I keep getting.
Im having a flare up at the mo and Ive been told to keep a photo diary whilst I wait for my dermatologist appt at the start of June..... any tips other than salt soaks and twice daily steroid cream to help ?
Ive attached a shot taken tonight....
Its very painful and sore :-(

Thanks in advance

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Marcie Mom
Posts: 833
Joined: Tue Apr 17, 2012 3:30 pm
Location: Singapore
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by Marcie Mom on Wed Apr 25, 2018 4:36 am

Re: Pompholyx Eczema

Sorry to hear of the eczema.. no experience with this, but you can check out other sharing

http://www.talkhealthpartnership.com/ta ... y.php?c=39
https://www.talkhealthpartnership.com/f ... =77&t=2420

Take care!
Mei
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Mei - Founder of http://www.EczemaBlues.com and Mom to Marcie
Visit Mei on her talkhealth blog all about eczema http://www.talkhealthpartnership.com/blog/author/mei_m/

emmalouisecherry
Posts: 2
Joined: Sun Feb 10, 2019 2:21 pm
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by emmalouisecherry on Sun Feb 10, 2019 2:40 pm

Re: Pompholyx Eczema

Hello, I suffered with this from a very young age and have only just got it under control in the last few years.

It was agony, I couldn't walk, my feet looked like I had leprosy, it was a nightmare. I had loads of allergy tests done, had my feet poked and prodded by all kinds of doctors, and photos of my feet even ended up in textbooks! Really, in the long run, the doctors were no use. The steroid creams and weird coal tar creams I was given didn't help, if anything made it worse.

What I found really, really helped were the following:

1. Wear shoes that let your feet breath. What I found worked were suede desert boots. Anything with natural fabrics, not too much rubber.
2. Change your socks at least twice a day. My flareups were in the summer, so it was obvious that it was connected to having really hot feet! I found cotton trainer socks helped. Having naked feet against the inside of my shoes was too painful, and seemed to make it worse.
3. Go barefoot as much a humanly possible. This really makes a difference. Take your shoes off as soon as you get home!
4. If having a flare up and you have the small itchy blisters, try soaking your feet in warm water for 10 minutes, dry them thoroughly and then use the cream I suggest below, and leave your shoes off.
5. I went down the herbal route, and looked into creams that stopped the itch, but weren't full of chemicals. If you can control the itch, you won't get the blisters, and then the skin won't break. The best, most amazing product I found, and I absolutely swear by, is Hopes Relief. This is basically some kind of gift from the gods! It stopped the itch, moisturized my feet, and I am so incredibly grateful that I discovered it...

Yes, it is pricey for one tube, but it lasts for at least two months, and that's putting it on twice a day. It stopped the vicious cycle of itching, blisters, skin hardening up and then breaking. You really won't regret investing in this stuff.
https://www.amazon.co.uk/Hopes-Relief-I ... cue-Cream/

I really hope that's of help to people. Honestly, I feel your pain, it was just the worst, most uncomfortable thing, and so embarrassing! I think so many more people than we realise suffer from it, but are just too ashamed to talk about it.

Good luck!

Emma x

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talkhealth
Posts: 1717
Joined: Thu Nov 04, 2010 3:29 pm
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by talkhealth on Mon Feb 11, 2019 2:15 pm

Re: Pompholyx Eczema

Hi emmalouisecherry

Thank you for your very helpful and informative reply.

Kind regards
talkhealth
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Sparky john
Posts: 2
Joined: Sat Feb 01, 2020 6:56 pm
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by Sparky john on Sat Feb 01, 2020 7:12 pm

Re: Pompholyx Eczema

Hi, I'm John, 56 years young.

Since 2016 I have had pompholyx, starting with 2 itchy 'scabs' on the side of my right ring-finger. Since then, it has grown to cover the fingers and palms of both hands but, mercifully, not my feet. ( I hope to God I have not tempted fate in that statement ).

For months I went through various GPs who had no idea what my condition was - until I self-diagnosed on the Internet; and now they all agree. And they all tell me it is incurable.

As an engineer and organist, this condition causes my considerable grief and anxiety during ( the increasingly frequent ) flare-ups. I am currently off work due to a flare-up; these episodes cost me a fortune.

Sometimes I want to cut my hands off... I have had all the steroid cream I can as my skin is now too thinned to use them anymore without bringing about lesions due to weakness. I am currently constantly moisturising and washing in TCP/water to kill the inevitable infections.

If anyone has any help to offer regarding pain and condition management, I would be so unbelievably grateful. I really am getting to my wit's end. :(

Kaydun27
Posts: 3
Joined: Sun Oct 25, 2020 1:20 am
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by Kaydun27 on Sun Oct 25, 2020 1:36 am

Re: Pompholyx Eczema

I’m 8 years into suffering & still no remedie or cure , people just don’t understand how depressing this condition is - good luck

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