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sopna
Posts: 12
Joined: Wed Mar 03, 2010 1:50 am
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by sopna on Fri Mar 25, 2011 11:20 pm

protopic

Hello

My daughters been prescribed with protopic today from the hospital, shes only 4. Even though the reassured me she will be ok im still a bit worried cos of the immune changing factor. I was wondering has anyone used this before and how they got on?

Thank you
Sopna

olivermax
Posts: 3
Joined: Sat Jun 05, 2010 8:52 pm
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by olivermax on Sun Mar 27, 2011 8:43 pm

Re: protopic

Hi
I have a 6 year old boy with severe atopic eczema. He has had protopic 0.03 now for about six weeks. The first few days his skin was itchy when applied, but after a few days the eczema faded from his face and i was applying the cream once ever other day until about once or twice a week. His face cleared up - but the rest of his body has been terrible. Hospital are booking him in for light therapy treatment :cry:

Unfortunately, his skin is severe at the moment (all over his body). As we're now into spring and we've had a few warm days he's started getting bumps on his face. I've used the protopic more this week and I'm panicking about whether it's OK to put it on when it's warm sunny. I put some on last night. His dad had him today, but unfortunately didn't put his hat on and took him to the coast - great!. tonight his face was beetroot - i've managed to cool him down by applying hydromol ointment and keeping his room cool and fanning his face.

Like you I am worried too, but nothing else seems to work, but I worry there are implications using immune supressants.

Sorry I haven't really answered your question - just ranted on about my own worries.
:|
best wishes

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AnnaB
Posts: 689
Joined: Tue May 13, 2008 10:38 pm
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by AnnaB on Mon Mar 28, 2011 2:27 pm

Re: protopic

Hi
Both of my children now aged 4 and 6 use protopic on bad areas where nothing else is working. I refused it for a year but then realised their quality of life was suffering. Again it is a balancing act - split bleeding skin is at risk of infection needing antibiotics. My son had started to show signs of skin thinning so I knew we'd triend all options 1st and had to take this next step. We use it only at night and steroids in the day and keep sun exposure to a minimum. I've just seen my son doing PE at school and he's wearing his hat that also covers his neck and has cotton gloves on as his hands are bad at the moment. I feel for him but I know I am doing the best I can for him.
AnnaB
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olivermax
Posts: 3
Joined: Sat Jun 05, 2010 8:52 pm
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by olivermax on Mon Mar 28, 2011 8:18 pm

Re: protopic

Hi
What are the signs of skin thinning in a young child?
cheers

Jimbob
Posts: 336
Joined: Thu May 08, 2008 9:00 pm
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by Jimbob on Tue Mar 29, 2011 9:56 am

Re: protopic

My son is 6 years old and we have been using protopic 0.1 twice a day since November. I do worry about it but my so definitely has a better quality of life at the moment.

Jaydean
Posts: 8
Joined: Wed Mar 09, 2011 2:31 pm
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by Jaydean on Fri Apr 08, 2011 5:23 pm

Re: protopic

Hi,

Im in my 30s with sever eczema and they perscribed me with protopic. It also goes by the name of Tacrilimus, and apparently it isnt a steriod cream so your little one should be fine. Its starnge Ive suffered from this disease for 28 years, not have a 2 year old and I watch her skin like a hawk.

sopna
Posts: 12
Joined: Wed Mar 03, 2010 1:50 am
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by sopna on Mon Apr 11, 2011 11:49 pm

Re: protopic

Hi,

Thank you all for your replies. I applied the cream on my daughter and the first couple of nights she actually slept through, however its a battle to put it on her now. Can i just ask can u apply the protopic striaght away after mositurisers?

Sopna

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AnnaB
Posts: 689
Joined: Tue May 13, 2008 10:38 pm
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by AnnaB on Tue Apr 12, 2011 6:47 am

Re: protopic

Hi
We apply the protopic then moisturise on top this stops the moisturiser being a barrier so the skin gets full benefit from the protopic. I try to leave a break between the 2 creams but sometime time just does not allow.
AnnaB
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Jimbob
Posts: 336
Joined: Thu May 08, 2008 9:00 pm
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by Jimbob on Wed Apr 13, 2011 9:57 am

Re: protopic

We do the same as previous post.

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