Vulvodynia

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pod70
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Joined: Tue Jun 07, 2011 1:13 pm
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by pod70 on Thu Mar 07, 2013 1:39 pm

Vulvodynia

I have had vulvodynia for 3 years.
I have been tested for every infection and it has come back clear.
I have tried numerous steroids, oestrogen cream, physio and recently came off the pill and had a few acupuncture sessions.
Amitriptyline helped my bladder pain (I also get interstitial cycstitis) but made me gain weight, even at a low dose.

I have been told my final option is Gabapentin, but am reluctant to try this due to potential side effects - do you have any other suggestions?

I am investigating hypoallergenic underwear as I believe this is a skin problem as opposed to a nerve one.

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Dr Amanda Tristram
Posts: 21
Joined: Tue Mar 05, 2013 11:53 am
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by Dr Amanda Tristram on Fri Mar 08, 2013 10:08 pm

Re: Vulvodynia

I'm afraid I don't have any other good suggestions. After everything else you've been through and tried, gabapentin is the next thing on the list. It might be worth trying it, not everyone gets side effects and they go away when you stop taking it. The best thing is to build up the dose gradually. I would suggest trying it and then you can see if the benefits outweigh the side effects. It may be a skin problem, although this is probably unlikely, given that steroids didn't help you.
Dr Amanda Tristram
Senior Lecturer in Gynaecological Oncology

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Mr. Hugh Byrne, MRCOG
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Joined: Fri Mar 16, 2012 12:21 pm
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by Mr. Hugh Byrne, MRCOG on Sat Mar 09, 2013 9:26 pm

Re: Vulvodynia

Other possibilities include injections of botox, or combinations of an anaesthetic/hyaluronidase and steroid in injection form.
Mr Hugh Byrne
Consultant in Obstetrics and Gynaecology
St Georges Hospital

http://www.talkhealthpartnership.com/online_clinics/experts/mr_hugh_byrne.php

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Mr Stelios Doumouchtsis
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Joined: Mon Mar 04, 2013 12:39 pm
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by Mr Stelios Doumouchtsis on Mon Mar 11, 2013 2:39 pm

Re: Vulvodynia

These problems require a systematic approach and of course detailed information related to history, onset of the symptoms, aggravating / exacerbating or relieving factors, any previous or recent childbirth or surgery.

It is important to differentiate if this is predominantly a skin problem or neuropathic pain.

In many cases a combined treatment approach may be more efficacious including oral medication, topical treatments and also nerve blocks (injections).

Usually in cases where injections are required, a series of injections may provide more sustained resolution.

Please see our study results on the management of chronic pain in the link below.

http://www.ncbi.nlm.nih.gov/pubmed/?ter ... s+perineal
Mr Stergios (Stelios) Doumouchtsis
MSc MPH PhD MRCOG
Consultant Obstetrician and Gynaecologist, Subspecialist Urogynaecologist

http://www.talkhealthpartnership.com/on ... chtsis.php

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