finding gp's who have an interest in fms

[jameelah]

Hi,

I totally understand that GP's cannot be expected to be knowledgable in all the medical conditions, however I seem to be finding it difficult to find a GP in my new area who 1)has an interest in fms or 2) is prepared to register me and then provide me with the appropriate referrals to Rheumatology, Pain management, Physiotherapy etc. Or if I can find one, technically I'm outside their area due to location Argh!!! I have been seeing my previous GP for the past 3 years and not been able to get them to refer me for the additional support, the only thing I've obtained was a transfer from one drug to another (which didn't work and I transfered back). If I mention any problems i've been having i'm often just told 'oh yes that happens with fms', which is not much help in obtaining coping strategies, or similar. It is also so impossible nowadays to get an appointment to see my current GP inside of a week that when I am experiencing a flare I am unable to get to a GP so they can experience the problems first hand. I just feel very under supported, constantly depressed, in constant pain, constantly fatigued and that's only on an acceptable day. During a flare I don't go out. In order to cope in my 'daily' life my out of public life has deteriorated and I spend most of my time in bed. I have NO social life, limited friends, don't visit people, don't speak to people on the phone and feel very isolated. even my wonderfully supportive husband is becoming frustrated by the loss of our relationship as he has been reduced to the level of my housekeeper, carer, provider, instead of partner. I would really welcome any suggestions in obtaining the help I clearly need, especially with regards finding a suitable GP in my area. thank youl.

[Wendy Green]

Hi jameelah,

I'm just wondering if your current GP is aware of the extent of your fibromyalgia symptoms and how severely they are impacting on your quality of life?

Something I did a little while ago when I was suffering from frequent, chronic migraines, was to keep a diary of my symptoms, including their severity and frequency. Perhaps you could do the same and take your diary with you to your next appointment? Perhaps when your GP sees what you are suffering on a day-to-day basis in black and white they might take notice! I would keep on telling your GP how badly affected you are until they DO listen and refer you to a specialist, or I would change GPs until you find one who is sympathetic. Not easy I know, but it will be worthwhile in the end.

With regard to feeling isolated - have you considered joining a support group, such as those run by Fibromyalgia Association UK - http://www.fmauk.org and Fibro Action - http://www.fibroaction.org Talking to fellow sufferers who understand what you're going through could help you to feel more positive and supported.

I wish you well.

[pam stewart]

I would add that your local support group may know of a supportive GP or at least where to get a good referral to a consultant.