Staying independent re food & drink...
Posted: Thu Aug 15, 2013 4:49 pm
Sue
Jessica B on the other thread here viewtopic.php?f=490&t=4564
suggested I ask you about how to cope with my difficulties in doing basic stuff since my recent relapse (that's showing no signs of going away again).
It was a bit of a shock to find that whilst I could walk/stagger/crawl (depending on the way the day was going) to the kitchen and rest and forage for food/drink, I then had to rest for ages before actually managing to eat/drink, if at all. (I'm still shocked - it didn't occur to me it could get this bad this fast before).
mum & dad are helping me with straws in large glasses of water (strategically strewn around the living room) and also they do my shopping & also cutting up food/ doing cooking (a few days' worth at a time, then I do foraging when I'm hungry) - but they're old & tired and it's too much for them - so social services are coming to see what aids I need for basic things like hydration/ nutrition/ personal care next week. BUT. Social Services don't know much about CFS/ME and it's no use them expecting me to be an expert patient cos this is the first time I've been this ill.
Any ideas/ tips/ things you know work for CFS/ME people?
Jessica B on the other thread here viewtopic.php?f=490&t=4564
suggested I ask you about how to cope with my difficulties in doing basic stuff since my recent relapse (that's showing no signs of going away again).
It was a bit of a shock to find that whilst I could walk/stagger/crawl (depending on the way the day was going) to the kitchen and rest and forage for food/drink, I then had to rest for ages before actually managing to eat/drink, if at all. (I'm still shocked - it didn't occur to me it could get this bad this fast before).
mum & dad are helping me with straws in large glasses of water (strategically strewn around the living room) and also they do my shopping & also cutting up food/ doing cooking (a few days' worth at a time, then I do foraging when I'm hungry) - but they're old & tired and it's too much for them - so social services are coming to see what aids I need for basic things like hydration/ nutrition/ personal care next week. BUT. Social Services don't know much about CFS/ME and it's no use them expecting me to be an expert patient cos this is the first time I've been this ill.
Any ideas/ tips/ things you know work for CFS/ME people?