Would love some suggestions re food issues
Posted: Sun Aug 18, 2013 5:28 am
I didnt have any food issues at all till 10 years into ME and then suddenly developed food intollerances (to coffee, peanuts, cashews, artifical sweeteners, a green artifical colouring and some dairy issues), IBS, severe hypoglyemia attacks (which showed up very abnormal low glucose on blood tests) and MCS too. Then 2 years ago I developed hyperinsulinemia and despite being put on very strict low carb diet, my test results continue to worsen to now are almost diabetic to (I dont know if I still get hypoglyemia anymore). Ive seen 2 nutritionists and see 2 different specialists for my food issues but things are just worsening thou Ive been following their diets.
I get SEVERE reactions to carbs (if i break my no carb diet and have too many carbs, my GERD comes back which I used to be on prescription drugs for.. very low carb diet=no GERD drugs needed, I get more sore throats, more tiredness and worst of all I become severely emotionally unstable so people can always tell when Ive breached my very low carb diet even if Im trying to hide that I did. (my diet needs to be far lower then a diabetes diet as I react badly to the amount of carbs in those. My insulin levels are 3 times higher then the normal range on tests and maybe go higher at times). Ive hit people and broken windows with the severe mood swings I get from the hyperinsulinemia with breaching my diet and it turns my PMS into PMDD. I suspect cause I also have the mutiple chemical sensitivity with the ME/CFS that that may be why my reactions to the high insulin is so severe.
With complete dairy avoidance for a couple of years, my dairy issue with it giving me a headache went away (it didnt give tummy issues nor bowel issues just headaches from milk). Ive been tested for lactose intollerance and I dont have that. Is it likey to be casein in dairy Im reacting too? (I was thou getting milk for a certain goat for a while and was fine with that thou I wasnt fine with the shop goats milk).
For the past month Ive started to milk again, this time its presenting with symptoms my sister gets too with it thou she also gets diarhear (she too doesnt have lactose intollerance thou). My issue to milk presents differently to before (no headache) but now if Ive had too much dairy during the day eg cheese on my mushrooms or a yougurt, Im getting some kind of autoimmune reaction to it and waking up during the night sick ie feeling very generally unwell, sick in my tummy and also with my neck aching, the milk reaction affects my joints.
As my ME is too severe to get back to my specialists and they dont do phone consults, Im needing some ideas of things to add to what is now a very limited diet Im hating but arent having any other choice but to stick to it due to the bad affects I get when I dont. What makes my food issues worst is that Im usually too sick to cook for myself (I can not stand at a stove and often need to use a wheelchair). I do avoid gluten as I have the genotype for celiac disease showing on my tests and have several family members too with celiac disease and I feel slugglish when I have bread etc, I may of also recently developed an issue with eggs which were one of my staples as I now feel often sick after eatting those (my daughter goes into vomiting when she eats eggs). I also may have an issue with soy (a soy based protien drink gave me diarhearr so bad that I was wearing nappies as it make me completely bowel intolerant).
Anyway, have you got a few suggestions for breakfast, lunch and dinner for someone with all the food issues I current have? (I dont know if Im fructose intollerant too but my specialists have told me due to my carb issue to have no more then one small piece of fruit per day and no concentrated fruit juices, i didnt tend to be much of a fruit eatter anyway). Due to my insulin problem Ive been told I have to eat protein every meal.
I get SEVERE reactions to carbs (if i break my no carb diet and have too many carbs, my GERD comes back which I used to be on prescription drugs for.. very low carb diet=no GERD drugs needed, I get more sore throats, more tiredness and worst of all I become severely emotionally unstable so people can always tell when Ive breached my very low carb diet even if Im trying to hide that I did. (my diet needs to be far lower then a diabetes diet as I react badly to the amount of carbs in those. My insulin levels are 3 times higher then the normal range on tests and maybe go higher at times). Ive hit people and broken windows with the severe mood swings I get from the hyperinsulinemia with breaching my diet and it turns my PMS into PMDD. I suspect cause I also have the mutiple chemical sensitivity with the ME/CFS that that may be why my reactions to the high insulin is so severe.
With complete dairy avoidance for a couple of years, my dairy issue with it giving me a headache went away (it didnt give tummy issues nor bowel issues just headaches from milk). Ive been tested for lactose intollerance and I dont have that. Is it likey to be casein in dairy Im reacting too? (I was thou getting milk for a certain goat for a while and was fine with that thou I wasnt fine with the shop goats milk).
For the past month Ive started to milk again, this time its presenting with symptoms my sister gets too with it thou she also gets diarhear (she too doesnt have lactose intollerance thou). My issue to milk presents differently to before (no headache) but now if Ive had too much dairy during the day eg cheese on my mushrooms or a yougurt, Im getting some kind of autoimmune reaction to it and waking up during the night sick ie feeling very generally unwell, sick in my tummy and also with my neck aching, the milk reaction affects my joints.
As my ME is too severe to get back to my specialists and they dont do phone consults, Im needing some ideas of things to add to what is now a very limited diet Im hating but arent having any other choice but to stick to it due to the bad affects I get when I dont. What makes my food issues worst is that Im usually too sick to cook for myself (I can not stand at a stove and often need to use a wheelchair). I do avoid gluten as I have the genotype for celiac disease showing on my tests and have several family members too with celiac disease and I feel slugglish when I have bread etc, I may of also recently developed an issue with eggs which were one of my staples as I now feel often sick after eatting those (my daughter goes into vomiting when she eats eggs). I also may have an issue with soy (a soy based protien drink gave me diarhearr so bad that I was wearing nappies as it make me completely bowel intolerant).
Anyway, have you got a few suggestions for breakfast, lunch and dinner for someone with all the food issues I current have? (I dont know if Im fructose intollerant too but my specialists have told me due to my carb issue to have no more then one small piece of fruit per day and no concentrated fruit juices, i didnt tend to be much of a fruit eatter anyway). Due to my insulin problem Ive been told I have to eat protein every meal.