Harmful Exercise 2 - Attention Dr Miller

Please ask our experts about physical activity & exercise in relation to CFS/ME here.

Moderator: talkhealth

3 posts
User avatar
Posts: 1759
Joined: Thu Nov 04, 2010 3:29 pm

by talkhealth on Mon Aug 19, 2013 2:12 pm

Re: Harmful Exercise 2 - Attention Dr Miller

The PACE trial principal investigators answer questions about graded exercise therapy and the trial

A number of people have asked questions about the PACE trial and, in particular, about whether graded exercise therapy (GET) is a safe and effective treatment. The attached information, supplied directly from the PACE trial principal investigators, briefly describes the trial and its conclusions, as well as providing a link to the trial website where more detailed information and downloads are available.

http://www.talkhealthpartnership.com/on ... L_info.php
talkhealth team

Visit our events page - https://www.talkhealthpartnership.com/events

Posts: 18
Joined: Wed Aug 14, 2013 3:25 pm

by Laurellen on Mon Aug 19, 2013 3:47 pm

Re: Harmful Exercise 2 - Attention Dr Miller

Unfortunately the PACE trial principal investigators avoided answering most of the specific points that had been raised in the now locked thread.

It would be interesting to know what Dr Miller thought could be done to ensure that patients had access to more useful data from the PACE trial than that which it's PIs have chosen to allow us, like the outcome measures laid out in the trial's protocol: http://www.whatdotheyknow.com/request/p ... tes_and_po

That included a criteria for 'recovery' which did not count patients as recovered when they were more disabled than was needed to be classed as suffering from severe and disabling fatigue at the start of the trial, unlike the 'recovery' data that has now been released.

3 posts