Does my child have CFS

Ask our experts all your paediatric medical questions here.

Moderator: talkhealth

Locked
16 posts
miazulME
Posts: 5
Joined: Fri Aug 16, 2013 3:41 pm

by miazulME on Fri Aug 16, 2013 5:25 pm

Re: Does my child have CFS

talkhealth wrote:We run these clinics specifically for patients and people affected by health conditions to talk directly to medical professionals. We do recognise the value of advice from those with personal experiences and have a range of forums (separate to these clinics) where patients can freely talk to one another and share any knowledge and advice that they may have. These forums can be found using this link: http://www.talkhealthpartnership.com/forums/
For clarification then which of these specifically is the forum for ME?

User avatar
admin
Site Admin
Posts: 131
Joined: Sat Mar 08, 2008 6:28 pm
Location: South East, UK

by admin on Fri Aug 16, 2013 5:31 pm

Re: Does my child have CFS

Currently there is no specific forum for ME. We do have a talkpain forum.

If there is a need for a talkME forum, we would be happy to consider creating one.
talkhealth team
Read our health blog - http://www.talkhealthpartnership.com/blog

User avatar
Dr Caroline Grayson
Posts: 21
Joined: Wed Aug 14, 2013 10:20 am

by Dr Caroline Grayson on Fri Aug 16, 2013 9:47 pm

Re: Does my child have CFS

I think it may be helpful to seek a further opinion.
The data about prognosis I quote comes from the longitudinal studies from the Bath and Bristol service were 96% of children and young people were found to make a full or good recovery.
I note that there has been previous recommendations to consult the TYMES Trust and I want to clarify that the recommendations from this organisation do not follow NICE guidelines and I do not endorse their approach
Caroline Grayson
Dr Caroline Grayson
Consultant Paediatrician

onlyme2013
Posts: 21
Joined: Sun Aug 11, 2013 3:58 pm

by onlyme2013 on Sat Aug 17, 2013 12:20 am

Re: Does my child have CFS

Dr Grayson, as it was suggested that I contact the TYMES Trust it would be helpful to me if you would expand on which of their recommendations you do not agree with?
I also asked for links to studies on effectiveness/outcomes of GET for children and would be grateful if you would provide some.

Locked
16 posts