Anxiety

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ITSONLEYME
Posts: 4
Joined: Thu Aug 15, 2013 11:12 am

by ITSONLEYME on Thu Aug 15, 2013 11:52 am

Anxiety

I have been diagnosed with CFS, since 2005 and Fibromyalgia since 2004, having struggled for many years, with no help or support from my medical practice. I then went on to develop severe Chrons disease, with major surgery to have a bowl resection and an Iliostomy. I am now on Humira, no signs of muscle pain or fatigue improving. trying to cope with chest infections and migraines, new to me. I visited my Gp,she still is saying Anxiety, I cannott seem to get any compassion or empathy and understanding, they have no time for me, and I feel no one really cares,this makes me feel as I am making it up, Somataform disorder has been mentioned, when I asked if I was going to be put away, the answer was, theres no where to put you..... how can I get some kind of understanding. I have thought about changing practice, but fearful of what has been written in my notes, because this will follow me.

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Dr Charles Shepherd
Posts: 215
Joined: Wed Aug 07, 2013 11:30 am

by Dr Charles Shepherd on Thu Aug 15, 2013 12:37 pm

Re: Anxiety

You ought to ask your GP if you could be referred to a specialist ME/CFS clinic for an opinion on both diagnosis and management

Full list of NHS hospital based ME/CFS services, including contact/phone numbers can be found on the MEA website:

http://www.meassociation.org.uk
Dr Charles Shepherd
MB BS, Honorary Medical Adviser, ME Association

ITSONLEYME
Posts: 4
Joined: Thu Aug 15, 2013 11:12 am

by ITSONLEYME on Thu Aug 15, 2013 1:16 pm

Re: Anxiety

Thank you for your reply. I have been referred back to Gp care in 2005, but my practice does not seem to accept cfsor fibromyalgia, when asked they reply "its complicated" I really would like to find some way of moving forward. any ideas?

ITSONLEYME
Posts: 4
Joined: Thu Aug 15, 2013 11:12 am

by ITSONLEYME on Thu Aug 15, 2013 1:18 pm

Re: Anxiety

ps. I live in Norfolk

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Dr Charles Shepherd
Posts: 215
Joined: Wed Aug 07, 2013 11:30 am

by Dr Charles Shepherd on Thu Aug 15, 2013 2:42 pm

Re: Anxiety

Have you asked if you could be referred to the specialist service covering Norfolk and Suffolk?

From MEA website NHS services list:

Norfolk and Suffolk
GP referrals to ME/CFS Service, Occupational Therapy Department, Lowestoft Hospital, Tennyson Road, Lowestoft, Suffolk NR32 1PT, tel: 01502 527579, fax: 01502 527554. Senior Occupational Therapist: Jo O’Leary. Clinics are held at the St James Health and Resource Centre, Queens Road, Great Yarmouth NR30 3DG, tel: 01493 335 790.
Dr Charles Shepherd
MB BS, Honorary Medical Adviser, ME Association

ITSONLEYME
Posts: 4
Joined: Thu Aug 15, 2013 11:12 am

by ITSONLEYME on Thu Aug 15, 2013 3:03 pm

Re: Anxiety

Thank you so much.

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