adult medical

Moderator: talkhealth

Are there any centres where people with M.E. can go and stay

Postby katiejayne on Tue Aug 20, 2013 2:37 pm

Just a thought, but wouldn't it be lovely to be able to stay in a nice centre for a few days with like-minded people who understood your condition and medical staff around who believe and understand you and are there to help if things get tough? I know it would help my family (carers!) if they could get a break from me sometimes too!
katiejayne
 
Posts: 5
Joined: Wed Aug 14, 2013 5:09 pm

Re: Are there any centres where people with M.E. can go and

Postby Dr Charles Shepherd on Tue Aug 20, 2013 2:46 pm

There are a few centres in the private sector that offer this type of approach, or respite care

The MEA has a list if you need one

MEA website: www.meassociation.org.uk
Dr Charles Shepherd
MB BS, Honorary Medical Adviser, ME Association
User avatar
Dr Charles Shepherd
 
Posts: 215
Joined: Wed Aug 07, 2013 11:30 am

Re: Are there any centres where people with M.E. can go and

Postby Dr Charles Shepherd on Tue Aug 20, 2013 2:48 pm

One example from the private sector:

http://www.burrswood.org.uk/news_events ... _programme
Dr Charles Shepherd
MB BS, Honorary Medical Adviser, ME Association
User avatar
Dr Charles Shepherd
 
Posts: 215
Joined: Wed Aug 07, 2013 11:30 am

Re: Are there any centres where people with M.E. can go and

Postby goblinff on Tue Aug 20, 2013 3:50 pm

Hannah Clifton, who I met through an ex-boss (who is now a Trustee of this charity, and frankly without his support I wouldn't have got diagnosed or any treatment for ME/CFS and who with his team bent over backwards to help me stay working on a project with his firm. I am hugely and eternally grateful to him for this) - set up this charity.

http://www.metrust.org.uk/

They aim to fund ONE bed at Burrswood specifically for ME/CFS sufferers who couldn't otherwise afford it.

On a personal note, I met her in 2009 and it was a real reassurance and inspiration to hear how bad her severe ME/CFS was, and how much of her life she lost, and how Burrswood helped her get from totally bedbound to up & about with significant recovery.
goblinff
 
Posts: 30
Joined: Sun Aug 11, 2013 6:21 pm

Re: Are there any centres where people with M.E. can go and

Postby Dr Charles Shepherd on Tue Aug 20, 2013 4:05 pm

I have met Hannah - she came to the last meeting of the Forward ME Group of charities (Chairman: Countess of Mar) at the House of Lords

Forward ME Group information and Minutes of meetings:

http://www.forward-me.org.uk
Dr Charles Shepherd
MB BS, Honorary Medical Adviser, ME Association
User avatar
Dr Charles Shepherd
 
Posts: 215
Joined: Wed Aug 07, 2013 11:30 am

Who is online
Users browsing this forum: No registered users and 1 guest

cron