X-Link Ichthyosis & Genetic Study

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rockyscraig
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Joined: Tue Sep 24, 2013 10:43 am
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by rockyscraig on Tue Sep 24, 2013 10:49 am

X-Link Ichthyosis & Genetic Study

Hi.

My son is 14yrs old and has XLRI. I would be interested to know if there are any studies taking place with regard to this condition at any hospitals or Universities. When my son was a baby there was a blood sample taken but unforutnately it could not be tested as it congealed. XLRI does run in our family with my grandfather, brother and my son having the condition.

Many Thanks