Collodian Baby

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Wooley-R
Posts: 1
Joined: Tue Sep 24, 2013 4:42 pm
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by Wooley-R on Tue Sep 24, 2013 4:51 pm

Collodian Baby

Hi

My son is 3 months old and was born covered in collodian membrane. His type of Ichthyosis has not been confirmed as we are awaiting test results. It is assumed that he has Lamellar.

I have noticed over the last couple of weeks the skin in his face has become very taunt and breaks easily and he seems to be trying to scratch it alot lately. This is also affecting his eyes as the skin around them is very tight. As I am only learning about this condition, is this normal? I cream his face every 2-3 hours during the day.

Is there any cream you would recommend as the ointments and gels are very greasy for day time?
Can you suggest how I care for the skin around his eyes?
We are based in Ireland.
Many thanks
Vicky

Om's Mum
Posts: 2
Joined: Tue Sep 24, 2013 2:09 pm
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by Om's Mum on Tue Sep 24, 2013 5:27 pm

Re: Collodian Baby

Hi Vicky,

I have an 11 month old boy with lamellar. If you are on Facebook and would like to get in contact, my name is Sonal Koria. There is also a great group for people affected by Ichthyosis on FB. It's called "Friends of Ichthyosis". It's been a great source of information and a wonderful medium for meeting other parents.

Get in touch if you like.

Best wishes to you and your family :)

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