Online clinic on respiratory health - Apr 2015 idiopathic pulmonary fibrosis (IPF)

Why confine the discussion to IPF?

If you would like to ask our experts about idiopathic pulmonary fibrosis (IPF), please post them here.

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malcolmw
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Joined: Mon Apr 13, 2015 7:17 pm
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by malcolmw on Wed Apr 15, 2015 4:59 pm

Why confine the discussion to IPF?

Why is this forum confined to discussions regarding IPF. There are many people out there who have Pulmonary Fibrosis who feel they are being neglected as the medical profession only seems to be focussing on IPF.
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Vicky Barber
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Joined: Wed Apr 08, 2015 10:34 am
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by Vicky Barber on Thu Apr 16, 2015 5:44 am

Re: Why confine the discussion to IPF?

Hi Malcom

Thanks for your input, you are absolutely right. Is there anything we can help with

Best wishes

Vicky
Vicky Barber
Nurse Manager- British Lung Foundation
http://www.talkhealthpartnership.com/on ... barber.php
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Dr Joanna Porter
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by Dr Joanna Porter on Fri Apr 17, 2015 11:03 am

Re: Why confine the discussion to IPF?

Dear Malcolm. I completely agree. The majority of our patients at UCLH with pulmonary fibrosis do not have IPF. Unfortunately this group are not yet eligible for some of the novel therapies but we hope they will be soon.
Very best wishes Jo
Dr Joanna Porter
Medical Director and Clinical Lead of Lung Fibrosis
http://www.talkhealthpartnership.com/on ... porter.php
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