Living with Fibromyalgia and Chronic Pain disorders

Browse our forums now - if you wish to talk to others you need to be a member. Simply follow this link, create a username and password, and you could be talking to others in our forums today!

Moderator: talkhealth

Post Reply
13 posts
aimeecarr90
Posts: 4
Joined: Fri Jul 24, 2015 9:33 am
Quote

by aimeecarr90 on Tue Mar 08, 2016 3:37 pm

Living with Fibromyalgia and Chronic Pain disorders

Hi everyone,

My name is Aimee, I am 25 years old and have been suffering from Fibromyalgia for around 7 years but only diagnosed at 23 years old.

You can read my story here on the Talk Health Story Board: http://www.talkhealthpartnership.com/ta ... .php?c=110

Currently my pain isn't managed but I am working through various different medications, infusions etc with my local Pain Clinic. I am at a point in my life where I am in a wheelchair if I need to walk any further than to my car and back. Obviously this isn't the way I want to live my life at the age of 25 but I am struggling to improve my condition - It's gradually getting worse.

So everyone - If you're suffering from either Fibromyalgia or any other chronic pain disorder, what do you do on a daily basis to manage your pain? Do you experience flare ups or are you like me and experience no improvements regardless medication? Are there any treatments or therapies that you use to manage your symptoms?

If you are suffering and feeling like you need to speak to someone who can understand exactly what you're going through, this is a nice safe place to connect with others going through the same thing and I would be more than happy to offer support to anyone who feels like they need that extra bit of support :)

User avatar
admin
Site Admin
Posts: 131
Joined: Sat Mar 08, 2008 6:28 pm
Location: South East, UK
Quote

by admin on Tue Mar 08, 2016 8:15 pm

Re: Living with Fibromyalgia and Chronic Pain disorders

Thank you for taking the time to post in our forum. And it's great you have linked to your story too for others to read.

Your offer of help and support to others is very much appreciated. With help form members like you Aimee, we can really get this new community up and running! :)
talkhealth team
Read our health blog - http://www.talkhealthpartnership.com/blog

aimeecarr90
Posts: 4
Joined: Fri Jul 24, 2015 9:33 am
Quote

by aimeecarr90 on Tue Mar 08, 2016 8:24 pm

Re: Living with Fibromyalgia and Chronic Pain disorders

I hope so :) It'll be great for people to feel like they have a safe place to talk about their issues and get some support x

ceffo1
Posts: 1
Joined: Sat Jan 14, 2012 11:59 am
Quote

by ceffo1 on Thu Apr 07, 2016 4:40 pm

Re: Living with Fibromyalgia and Chronic Pain disorders

I was diagnosed with rheumatoid arthritis and lupus two years ago. I have been having treatment that has improved my life somewhat. Now, after a great deal of pain, I have been told that I also have Fibromyalgia. I am very confused as my Rheumatologist has written to my GP saying that I have 'probable' rheumatoid/lupus and 'probable' fibromyalgia. I am also in constant pain from osteoarthritis in my lower spine. I am taking so many pain relief treatments that I can't understand why I still have so much pain. Well now I have been referred back to pain clinic who said there was nothing more that can be done for the osteoarthritis. Lord knows what will happen when I see pain specialist again. I thought I was getting somewhere with the rheumatoid ( methotrexate tablets and Cimzia injections) Watch this space. I have appointment with pain clinic on 6th May. I am so despondent. I thought I was coping. I just want to be told what they advise next and hope it's not more medication.

aimeecarr90
Posts: 4
Joined: Fri Jul 24, 2015 9:33 am
Quote

by aimeecarr90 on Thu Apr 07, 2016 4:54 pm

Re: Living with Fibromyalgia and Chronic Pain disorders

Hiya love, thank you for sharing your story. I hope your pain specialist is able to find something that works for you. I understand what you're going through, it's awful when you're rattling from all the tablets you have to take when you don't feel much benefit, if at all. I am having second opinions too now, seems to be baffling specialists and sounds like you're in the same boat.

Let us know how you get on with your appointment and I will keep you in my prayers x

User avatar
talkhealth
Posts: 1759
Joined: Thu Nov 04, 2010 3:29 pm
Quote

by talkhealth on Wed Apr 13, 2016 7:30 pm

Re: Living with Fibromyalgia and Chronic Pain disorders

Thank you for the advice and support shared within the forum, its great to see members support each other.

Helen
talkhealth team

Visit our events page - https://www.talkhealthpartnership.com/events

c.norwell764@sky.com
Posts: 2
Joined: Fri Apr 15, 2016 8:09 am
Quote

by c.norwell764@sky.com on Fri Apr 15, 2016 1:46 pm

Re: Living with Fibromyalgia and Chronic Pain disorders

Hi I'm New to this site I have spinal stenosis I am on medication for it but don't really understand the condition my doctor has told me there is nothing more they can do for me so would appreciate any tips on how to control the condition ways to stop it being as painful in between medication I also have osteoarthritis in both hips and feel only being 51 there must be some way to stop myself from going into a wheelchair to soon I use sticks to get around at the moment so excersising is not an option for me thankyou for your time

User avatar
talkhealth
Posts: 1759
Joined: Thu Nov 04, 2010 3:29 pm
Quote

by talkhealth on Mon Apr 18, 2016 8:02 pm

Re: Living with Fibromyalgia and Chronic Pain disorders

Hi and welcome to talkarthritis.

I have attached a link for an answer to a question related to spinal stenosis that may be useful for you to read-
https://www.talkhealthpartnership.com/f ... hp?p=18646

Please let me know if this is helpful.

Helen
talkhealth team

Visit our events page - https://www.talkhealthpartnership.com/events

c.norwell764@sky.com
Posts: 2
Joined: Fri Apr 15, 2016 8:09 am
Quote

by c.norwell764@sky.com on Wed Apr 20, 2016 2:39 pm

Re: Living with Fibromyalgia and Chronic Pain disorders

Hi Helen thankyou for replying I went onto the site you sent but it kept coming up about bowel conditions perhaps I have done it wrong thankyou for your time

Post Reply
13 posts