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Undiagnosed bladder problem

Posted: Tue Jan 08, 2013 6:41 pm
by sjb242000
For just over a year now I have had a bladder problem.

Basically, I have the urge to pee most of the time, so as I am sure you can appreciate it has effected my day to day life as I am nervous to do a lot of things, attend social occasions etc – even getting through a day at work can be extremely hard work at times.

When this first started happening, I went to my GP as it was totally unlike I had ever felt before. I never thought twice about peeing before. After a few urine tests and some medication with no improvement, she referred me to a specialist on the NHS. Due to long waiting lists, I decided this problem was having such an effect on me that it was worth paying for private treatment, and began seeing a very nice guy and he carried out all manor of tests (frequency, sticking lines with cameras up me – all sorts), and tried a number of different medications, but got to the point where he said he didn’t know what else to try.
Still in a lot of discomfort, I got in contact with a urologist at London’s Harley street, again costing me hundreds of pounds. He has basically said its something to do with my nurves, and suggest acupuncture or Percutaneous Tibial Nerve Stimulation. I have complete about six sessions of acupuncture along with taking Chinese herbs, and I do feel reasonable at the moment, but its still not at all right. I have got in to a real routine of from bladder training – going to the loo every four hours, which I do manage but sometimes its very uncomfortable inbetween times. The PTNS treatment I mentioned above is quite a new procedure I believe, and places like Harley street charge thousands for it, so I am just waiting for a referral on the NHS to see if they will fund it.

Does anyone have any further advice, or similar problems? As I say, its not pain, it doesn’t hurt to pee, but most of the time I have the urge to go, even if I have only been very recently. Now and again I also get some light white coloured fluid build up on the head of my penis – not sure if this is connected. I have done a test with the GP on this, and it cam back clear.

I have tryed everything I can think off/been suggested – no caffine, very limited alcohol, bladder retraining, and am healthy otherwise.

I would love, just to have my normal life back....I’m only 29 with a great life other than this. If I could just find out what is wrong and what can be done to treat it...

Re: Undiagnosed bladder problem

Posted: Wed Jan 09, 2013 2:14 pm
by philip25
I suffer from urine retention and my symptoms sound very similar to yours.I have been self catheterising for a number of years now and this procedure helps manage the problem.My diagnosis was made 18 months after my first consultation by the use of a urodynamics procedure.
I hope this helps. :)

Re: Undiagnosed bladder problem

Posted: Wed Jan 09, 2013 10:18 pm
by sjb242000
Hi, thanks for your post. I have had the urodynamics test that you mentioned and it brought up no results.

If you don't mind me asking, what was your diagnosis? I've not heard of self catheting, what does it involve? Sorry if I am asking too personal questions and feel free to not respond!

Re: Undiagnosed bladder problem

Posted: Thu Jan 10, 2013 1:07 pm
by philip25
Intermittent self catherterisation is the process of passing a catheter into the bladder to drain any retained urine.This was the outcome of my uro dynamics test.I have been self cathing now for 11 years.I have learned to live with the process and it has become part of my life.
If you Google self catheterisation you should get a little more insight into the procedure and wheather or not it could help you even on a temporary basis. Please ask if you need more information from me.
Good look.