Bladder augmentation due to vesicovaginal fistula

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chrisgreece
Posts: 2
Joined: Sat Nov 22, 2014 9:29 am
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by chrisgreece on Sat Nov 22, 2014 10:09 am

Bladder augmentation due to vesicovaginal fistula

Hi, just wanted to share my story and see if any of you has a good piece of advice for me. 8 months ago I had a total hysterectomy (leaving ovaries) because of cervical cancer. Two weeks after the surgery I was diagnosed with a vesicovaginal fistula. That's a passage between my bladder and my vagina, at the size of 2cm, who left me fully incontinent. I have had two surgical attemps to repair it but they both failed. Urologist who performed my last cystoscopy said that the size of my bladder has reduced so he suggested a bladder augmentation to treat both this problem and the fistula as well. I have been wearing a supra catheter for 7 months now (and Folley as well from time to time ) and I am leaking anyway. In order to have the cystoplasty the doctor said that I'll have to take the supra off for a whole months, to be treated with antibiotics in order to prepare my body for this big surgery. I don't know yet if I am going to self catheterize, have Mitrofanoff or pee normally. Has anyone here had full incontinence and how you've treated that? I won't be able to have a catheter that means I'll have to wear diapers. But from the amount of fluids I take, I assume I'll be fully wetting them every hour or so. If you have similar experience or some good piece of advice I could use some, because the thought of what's to come, makes me sad, miserable and terrified.
01/02 Cervical cancer diagnosed
13/02/2014 Cone ectomy
10/03 Hysterectomy
07/04 Fistula repair (failed)
18/09 Fistula repair (f again)
Bladder augmentation in 2015

talalabd1
Posts: 2
Joined: Thu Jun 25, 2015 3:59 pm
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by talalabd1 on Thu Jun 25, 2015 4:13 pm

Re: Bladder augmentation due to vesicovaginal fistula

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is that true?
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