Aquagenic Pruritus

[juliecragg]

Hi, my daughter has just recieved a diagnoses of AP although i think she has AU too. As parts of her body does come up in a raised red rash after exposure. She is in extreme pain after showering. Is there any type of skin cleaner that doesnt contain water? She uses dry shampoo as it even effects her scalp. Also are there any upcoming trials or studies on this very rare condition?
Thanks

[Lisa BSF]

Hi Julie,
Sorry to hear about your daughter's condition.
You might find this link useful
https://rarediseases.info.nih.gov/disea ... 22715#1250
Good luck, Lisa