Undiagnosed Anaphylaxtic
Posted: Mon Feb 05, 2018 8:40 pm
Hi
My official diagnosis is "undignosed Anaphylaxis" which means there is no specific thing i react to. I just react and suffer very serious anaphylactic shock. I can continue to shock in hospital suffering multiple shocks back to back. My previous hospitalised shocks were about 8 years ago and i fought for my life. Until Jan 2017 when I was in a coma [unrelated to my anaphylactic diagnosis] and i suffered a terrible reaction to a medication. Then whilst in recovery in ITU I also reacted to creams, plasters, dressing etc [again un connected but hospital wont tell me what drug i reacted to and have not updated my medical records ?!?! I only found out as my husband told me about my face, mouth and hands swelling up whilst i was in my coma ?!?! have this included in a complaint with hospital as i believe i have a right to know] Im not allowed an epi pen and just live in fear of a reaction at anytime. Am i unique ? are there others out there ?
My official diagnosis is "undignosed Anaphylaxis" which means there is no specific thing i react to. I just react and suffer very serious anaphylactic shock. I can continue to shock in hospital suffering multiple shocks back to back. My previous hospitalised shocks were about 8 years ago and i fought for my life. Until Jan 2017 when I was in a coma [unrelated to my anaphylactic diagnosis] and i suffered a terrible reaction to a medication. Then whilst in recovery in ITU I also reacted to creams, plasters, dressing etc [again un connected but hospital wont tell me what drug i reacted to and have not updated my medical records ?!?! I only found out as my husband told me about my face, mouth and hands swelling up whilst i was in my coma ?!?! have this included in a complaint with hospital as i believe i have a right to know] Im not allowed an epi pen and just live in fear of a reaction at anytime. Am i unique ? are there others out there ?