Thank you for your reply Dr Grayson. We live in Glasgow and have been under Yorkhill Hospital for the last four years. Her Rheumatologist does have an interest in CFS/ME and we have been lucky to be under a wonderful consultant who has helped as best she can, but as she has admitted specialist help ...

Hi my niece and two friends with CFS/me have been referred to the Glasgow Homeopathic (sp) Hospital. They have been told it is where anyone with CFS/me is referred in the Glasgow area. It used to be Gartnavel Hospital but services were cut and they no longer see anyone and Specialist now works down ...

Unfortunately this is what we have been told previously. That she is "complex" in her conditions. For the first 2 years of her illness we were told various things it "may" be i.e. CFS, Lupus, Arthritis, Post Viral, Glandular Fever. Unfortunately never having a clear specific bloo...

Dr Grayson, she is under Rheumatology, has also been seen by Immunology. The year before her CFS her C4 complement level was 15 and C3 was 1.01. The year she became ill (after a viral illness, swine flu vaccination and then admittance to hospital with mesenteric adenitis all within 4 weeks of each o...

We found that the relapses continued in my daughter's case when physio was pushed on her. It was a horrible and stressful time at a time when she was at her worst. The worst I can remember is having an appointment with physio then seeing her Rheumatologist. She was (is still) using a wheelchair her ...

Thank you. I was concerned because Lupus had been mentioned, she suffers from rash from sunlight, swelling to knee, face etc and some other factors that didn't "fit" into CFS. We were told it can take up to 10 years to manifest itself and for "now" for ANA is negative. She suffer...

I just wanted to let you know we have had a similar experience. My daughter was referred to physio shortly after diagnosing CFS and the physio we saw pushed her really hard to the point where she was relapsing for 2/3 weeks after each session. I felt she had little knowledge of CFS and how it affect...

Hi my daughter, 16 was diagnosed with CFS 4 years ago. She has made only a slight improvement in 4 years. She is also Type 1 Diabetic has Idiopathic Angioedema, Severe Chronic Gastritis. She wasn't diagnosed for almost a year as they were excluding other problems ie. her C100 and she also presented ...