Hi Vicky, I have an 11 month old boy with lamellar. If you are on Facebook and would like to get in contact, my name is Sonal Koria. There is also a great group for people affected by Ichthyosis on FB. It's called "Friends of Ichthyosis". It's been a great source of information and a wonde...

Hi all, My son , Om is 11 months old and has been diagnosed with Lamellar Icthyosis or ARCI. We manage his condition well and apart from the visible difference between him and other children, he is a happy, tenacious, vibrant young boy. We are anxious to have more children so have been referred to a...