Search found 11 matches
- Wed May 21, 2014 7:19 pm
- Forum: general epilepsy questions
- Topic: newly diagnosed.
- Replies: 3
- Views: 4320
Re: newly diagnosed.
Dear Debb,
just to say I completely endorse the advice Anthony has given - good luck
Hannah
just to say I completely endorse the advice Anthony has given - good luck
Hannah
- Wed May 21, 2014 11:14 am
- Forum: living with epilepsy
- Topic: I feel shunned
- Replies: 6
- Views: 5776
Re: I feel shunned
Dear Fozzeduk, I'm sorry to hear of your experience, and as already suggested you should ask your consultant for advice. Sometimes consultants have a good idea of which local practices are more likely to be sympathetic in this situation/have a GP with an interest in epilepsy and/or associated mood o...
- Wed May 21, 2014 11:09 am
- Forum: treatment
- Topic: curing epilepsy
- Replies: 2
- Views: 4725
Re: curing epilepsy
Dear Diane, It depends what you mean by cure. Some people would argue that if seizures are completely controlled by medication, without side effects, even though the individual stays on the medication, they think of themselves as "cured" in that the epilepsy doesn't interefer with their da...
- Tue May 20, 2014 9:51 pm
- Forum: living with epilepsy
- Topic: Why are these called focal seizures?
- Replies: 2
- Views: 3625
Re: Why are these called focal seizures?
Dear Samantha, you really need to ask your neurologist to get a definite answer with respect to your individual case, as he/she is the person who will have access to your investigation results (brain imaging, EEG), and your full medical history. You should also tell him/her about your other symptoms...
Re: Epanutin
Dear TreeRoots, Epaneutin (Phenytoin) has been associated with damage to the ends of the long nerves causing sensory changes in the feet (peripheral neuropathy), but the same symptoms can be due to lots of other causes, so if you haven't already you should see your doctor to get this checked out. Th...
- Mon May 19, 2014 12:01 pm
- Forum: living with epilepsy
- Topic: Withdrawing Medication/Pregnancy
- Replies: 3
- Views: 4341
Re: Withdrawing Medication/Pregnancy
Dear Michelle, I'm very pleased to hear that you clearly had a good result from surgery for what sounds like previously difficult epilepsy. Making a decision about if and when to try withdrawing from antiepileptic medication is a very personal one, and there is no right or wrong answer. Although in ...
- Mon May 19, 2014 11:51 am
- Forum: diagnosis
- Topic: Diagnosed as Child
- Replies: 3
- Views: 4440
Re: Diagnosed as Child
Hi Pookalooza, I'd just typed a reply to this but now know that if I submit at the same time as someone else is replying, it doesn't get saved! Must remember to save before submitting in the future...... Anyway - as Kathy says - the bottom line is if you are worried you should speak to your GP, who ...
Re: Advise
Dear Elaine, as has already been said - you'll be asked about the symptoms/suspected seizures - including the circumstances, if there are any warning symptoms (they'll ask you son this also), what happens during the episodes, if there are any triggers, how he is afterwards, frequency etc. We usually...
- Sat May 17, 2014 3:13 pm
- Forum: living with epilepsy
- Topic: Sudden death in epilepsy
- Replies: 8
- Views: 7271
Re: Sudden death in epilepsy
dear Jelly Syrup,
My condolences for your loss, and I'm sorry to hear you felt let down. Lets hope the openness campaign and guidelines continue to improve the experience of families and people living with epilepsy.
Kind regards
Hannah
My condolences for your loss, and I'm sorry to hear you felt let down. Lets hope the openness campaign and guidelines continue to improve the experience of families and people living with epilepsy.
Kind regards
Hannah
- Sat May 17, 2014 12:30 pm
- Forum: living with epilepsy
- Topic: Sudden death in epilepsy
- Replies: 8
- Views: 7271
Re: Sudden death in epilepsy
Hi Foxcroft, Good question - as you've seen there is clear guidance on this, and it is something that should be discussed. The trickier question is how and when - and this can be hard to judge. My own practice is to mention it at the time of making the diagnosis, or whenever I first see a patient. T...