Search found 10 matches
- Wed May 21, 2014 10:59 am
- Forum: living with epilepsy
- Topic: I feel shunned
- Replies: 6
- Views: 4370
Re: I feel shunned
Thinking of you hope you find an understanding GP soon. Can't your consultant write you a letter to explain about your condition as GP's are not all experts in everyone's Epilepsy? Take care from Jelly Syrup
Re: Advise
Hi start keeping a daily diary & ask your child questions too so they are involved, on how they feel as he might get frustrated when you are asked the questions. Good luck for the appointment, take care from Jelly Syrup
- Mon May 19, 2014 3:23 pm
- Forum: diagnosis
- Topic: Diagnosed as Child
- Replies: 3
- Views: 3024
Re: Diagnosed as Child
I was told to keep taking my meds or my seizures could increase during my pregnancies. Take care from Jelly Syrup
Re: Advise
Hi Elaine, they will ask you what symptoms have you seen, staring, twitching, falling to the floor, shaking. What time of day morning, night time. What can start them off flashing lights. How long does it last seconds or minutes. If you can record one on camera or mobile phone easier to show consult...
- Sat May 17, 2014 8:15 pm
- Forum: living with epilepsy
- Topic: Sudden death in epilepsy
- Replies: 8
- Views: 5344
Re: Sudden death in epilepsy
Thank you Karen for your support, it has become a little easier, we have had a lot of support from family, friends & even my daughters friends! Take care from Jelly Syrup
- Sat May 17, 2014 8:09 pm
- Forum: treatment
- Topic: Just want to say many thanks
- Replies: 3
- Views: 2952
Re: Just want to say many thanks
Thanks Karen I have several conditions & Allergies, a friend on a forum introduced me to Medic Alert a few years ago, & my daughter had a necklace before she passed away. Take care from Jelly Syrup
- Sat May 17, 2014 3:47 pm
- Forum: seizures
- Topic: what to do when child has a seizure?
- Replies: 7
- Views: 6055
Re: what to do when child has a seizure?
Hi Judy show your friend & daughter the jewellery on the Medic Alert website when they are ready. I wear a bracelet & people think I am sometimes wearing a watch. It makes me feel safe www.medicalert.org.uk
- Sat May 17, 2014 3:37 pm
- Forum: treatment
- Topic: Just want to say many thanks
- Replies: 3
- Views: 2952
Just want to say many thanks
To all who work at Medic Alert, I have a bracelet with it on I feel safer. The staff on phone are brilliant & so helpful. Many thanks take care from Jelly Syrup
- Sat May 17, 2014 3:22 pm
- Forum: living with epilepsy
- Topic: Sudden death in epilepsy
- Replies: 8
- Views: 5344
Re: Sudden death in epilepsy
Thank you for your support Dr Hannah take care from Jelly Syrup
- Sat May 17, 2014 2:40 pm
- Forum: living with epilepsy
- Topic: Sudden death in epilepsy
- Replies: 8
- Views: 5344
Re: Sudden death in epilepsy
Hi I was never told about SUDEP but read about it on Epilepsy Action, I have had Epilepsy for 28 years since I was 16. My eldest daughter passed away from SUDEP on 5th of November 2007. Hazel was 17 years old. My consultant claimed he never knew I had a child with Epilepsy even though she had just m...