Search found 10 matches

Search found 10 matches
by Jelly Syrup
Wed May 21, 2014 10:59 am
Forum: living with epilepsy
Topic: I feel shunned
Replies: 6
Views: 4370

Re: I feel shunned

Thinking of you hope you find an understanding GP soon. Can't your consultant write you a letter to explain about your condition as GP's are not all experts in everyone's Epilepsy? Take care from Jelly Syrup
by Jelly Syrup
Mon May 19, 2014 3:35 pm
Forum: diagnosis
Topic: Advise
Replies: 7
Views: 5276

Re: Advise

Hi start keeping a daily diary & ask your child questions too so they are involved, on how they feel as he might get frustrated when you are asked the questions. Good luck for the appointment, take care from Jelly Syrup
by Jelly Syrup
Mon May 19, 2014 3:23 pm
Forum: diagnosis
Topic: Diagnosed as Child
Replies: 3
Views: 3024

Re: Diagnosed as Child

I was told to keep taking my meds or my seizures could increase during my pregnancies. Take care from Jelly Syrup
by Jelly Syrup
Mon May 19, 2014 10:25 am
Forum: diagnosis
Topic: Advise
Replies: 7
Views: 5276

Re: Advise

Hi Elaine, they will ask you what symptoms have you seen, staring, twitching, falling to the floor, shaking. What time of day morning, night time. What can start them off flashing lights. How long does it last seconds or minutes. If you can record one on camera or mobile phone easier to show consult...
by Jelly Syrup
Sat May 17, 2014 8:15 pm
Forum: living with epilepsy
Topic: Sudden death in epilepsy
Replies: 8
Views: 5344

Re: Sudden death in epilepsy

Thank you Karen for your support, it has become a little easier, we have had a lot of support from family, friends & even my daughters friends! Take care from Jelly Syrup
by Jelly Syrup
Sat May 17, 2014 8:09 pm
Forum: treatment
Topic: Just want to say many thanks
Replies: 3
Views: 2952

Re: Just want to say many thanks

Thanks Karen I have several conditions & Allergies, a friend on a forum introduced me to Medic Alert a few years ago, & my daughter had a necklace before she passed away. Take care from Jelly Syrup
by Jelly Syrup
Sat May 17, 2014 3:47 pm
Forum: seizures
Topic: what to do when child has a seizure?
Replies: 7
Views: 6055

Re: what to do when child has a seizure?

Hi Judy show your friend & daughter the jewellery on the Medic Alert website when they are ready. I wear a bracelet & people think I am sometimes wearing a watch. It makes me feel safe www.medicalert.org.uk
by Jelly Syrup
Sat May 17, 2014 3:37 pm
Forum: treatment
Topic: Just want to say many thanks
Replies: 3
Views: 2952

Just want to say many thanks

To all who work at Medic Alert, I have a bracelet with it on I feel safer. The staff on phone are brilliant & so helpful. Many thanks take care from Jelly Syrup
by Jelly Syrup
Sat May 17, 2014 3:22 pm
Forum: living with epilepsy
Topic: Sudden death in epilepsy
Replies: 8
Views: 5344

Re: Sudden death in epilepsy

Thank you for your support Dr Hannah take care from Jelly Syrup
by Jelly Syrup
Sat May 17, 2014 2:40 pm
Forum: living with epilepsy
Topic: Sudden death in epilepsy
Replies: 8
Views: 5344

Re: Sudden death in epilepsy

Hi I was never told about SUDEP but read about it on Epilepsy Action, I have had Epilepsy for 28 years since I was 16. My eldest daughter passed away from SUDEP on 5th of November 2007. Hazel was 17 years old. My consultant claimed he never knew I had a child with Epilepsy even though she had just m...
Search found 10 matches