Hi, any ideas of any suncream factor 50 that doesn’t have water as the main ingredient? Or anything which may help her AP to become a little more toleratable. She was diagnosed at stThomass hospital has had controlled light therapy but told that there is nothing more that they can do to try to help ...

Is Aquagenic Puritious a allergy. My daughter has just been diagnosed at StThomass hospital. Are there any new trials or research being done any time soon

Hi, my daughter has just recieved a diagnoses of AP although i think she has AU too. As parts of her body does come up in a raised red rash after exposure. She is in extreme pain after showering. Is there any type of skin cleaner that doesnt contain water? She uses dry shampoo as it even effects her...

My daughter has been diagnosed with PLE and has an appointment in dermatology tomorrow regarding aquagenic utercaria. Her sensitivity to water is getting worse as time goes on. It started with just her legs when bathing and now it's most of her body, even when she cries because of the pain after a 2...

Thank you for those sites. Yes, she was formally diagnosed at Guys hospital, London. She was also diagnosed with PLE and solar sensitivity. They have said the treatment for the aquagenic utacaria is UVA which will activate her PLE and solar issues.

Hi, can anyone help? My 16 year old who has been diagnosed with PLE for 10 years has now been told she has aquagenic utercaria, ( allergy to water). She has trouble keeping clean as every type of cleanser or soap has water as its main ingredient. Even the hospital Drs ask how she washes. The answer ...