Search found 30 matches

Search found 30 matches
by goblinff
Fri Aug 16, 2013 8:19 am
Forum: physical activity & exercise
Topic: Harmful Excercise
Replies: 14
Views: 10885

Re: Harmful Excercise

Thanks for that Dr Miller. If the aim of CBT & GET is to find a sustainable middle ground - which I think is what you've said, then - why doesn't APT (Adaptive Pacing Technique) also work the same? Doesn't it aim to do the same thing? That's what I don't understand about the PACE results - becau...
by goblinff
Thu Aug 15, 2013 7:14 pm
Forum: adult medical
Topic: What are my odds?
Replies: 8
Views: 3446

Re: What are my odds?

I know we're not supposed to be answering questions etc, but it's really helpful to hear that some people can & do recover (against all the percentages). I'm not hoping either, though I like knowing there's a bit of blue sky. I have come to the conclusion that having been forced by circumstances...
by goblinff
Thu Aug 15, 2013 7:09 pm
Forum: adult medical
Topic: PIP
Replies: 11
Views: 3315

Re: PIP

I know we're not supposed to be answering questions, but I've only just found out that it's not just Citizens Advice Bureau but also there should be a Benefits & Finance Advisor (who will have been part of the local council but probably now is part of social services under the NHS), who can help...
by goblinff
Thu Aug 15, 2013 7:04 pm
Forum: paediatric medical
Topic: Air Hunger
Replies: 10
Views: 8551

Re: Air Hunger

People keep saying POTS.
What is it?
by goblinff
Thu Aug 15, 2013 6:50 pm
Forum: adult medical
Topic: Why do we have to be expert patients?
Replies: 6
Views: 2665

Why do we have to be expert patients?

I'm finding this clinic really useful. There's lots of things I didn't know or assumed it was just me. And lots of things I'm grateful I don't have! But what's really struck me on reading what people are saying, is how difficult it appears to be for people to get any help, never mind adequate help t...
by goblinff
Thu Aug 15, 2013 6:02 pm
Forum: paediatric medical
Topic: Air Hunger
Replies: 10
Views: 8551

Re: Air Hunger

Caroline Where can one go to find 'simple breathing exercises'? Who does one ask? I'm not a child and it's a new thing to me (definitely not anxiety related) but some days I'm really concious of an effort to breathe if I'm super tired. So if there's some I could find to do for myself, it might help?
by goblinff
Thu Aug 15, 2013 5:47 pm
Forum: physical activity & exercise
Topic: Why does GET work for some and not for others?
Replies: 7
Views: 5319

Re: Why does GET work for some and not for others?

Picking up then from what you say Jessica (hopefully without sidetracking too much from the OP) that what patients are talking about in surveys as GET (apples) and what GET for ME/CFS actually is (pears) - can I ask what, if anything, is being done in terms of training/ retraining the therapists etc...
by goblinff
Thu Aug 15, 2013 5:38 pm
Forum: physical activity & exercise
Topic: GET - useful or risky?
Replies: 40
Views: 20629

Re: GET - useful or risky?

Thanks for that Jessica. I'd already had a look at the PACE Trial documents - but it's over 100 pages long and a bit overwhelming and, as you recommend, I don't like the idea of having a go by myself. I did think about downloading the Adaptive Pacing Guide from the PACE website, but again it's over ...
by goblinff
Thu Aug 15, 2013 5:07 pm
Forum: diet
Topic: Supplements
Replies: 3
Views: 3232

Re: Supplements

Thanks for that.
I will go look at labels on what I've got, use them up, then follow your advice when I buy the next lot.
Much appreciated.
by goblinff
Thu Aug 15, 2013 5:00 pm
Forum: diet
Topic: Healthy ready meals?
Replies: 10
Views: 8349

Re: Healthy ready meals?

I know we're not supposed to be answering questions from fellow CFS/ME people. But hopefully this will be taken in the spirit intended: would it be possible for part of the 20mins to be used to say chop up fresh veg etc & put sufficient ingredients in a slow cooker for several meals at once (one...
Search found 30 matches