Search found 40 matches
- Fri Aug 16, 2013 1:46 pm
- Forum: physical activity & exercise
- Topic: Old patient harmed by exercise programs
- Replies: 4
- Views: 5179
Re: Old patient harmed by exercise programs
Dear Thank you for the information. Regarding the above quote, I'm wondering how we can tell if it's going to be a temporary increase in symptoms, or an ongoing deterioration? Due to the delayed nature of post-exertional malaise, I often don't even know that I did too much until the next day, even w...
- Fri Aug 16, 2013 1:33 pm
- Forum: physical activity & exercise
- Topic: Baselines (& pacing)
- Replies: 5
- Views: 6310
Re: Baselines (& pacing)
Thanks goblinff There's no doubt you're going through a difficult time: a further piece of advice is as far as possible to surround yourself with positive people and interacting with people who have recovered, or are doing well with their condition. Unfortunately such people don't tend to shout abou...
- Fri Aug 16, 2013 11:58 am
- Forum: physical activity & exercise
- Topic: Flare ups.
- Replies: 5
- Views: 6690
Re: Flare ups.
Dr Bavington, can you explain what you mean by the following sentence? "This does mean ‘saying no’ to things that are currently significantly beyond your comfort level, but also increasing your activity when you don’t feel as good." You seem to be saying that we should not exert ourselves...
- Thu Aug 15, 2013 7:54 pm
- Forum: adult medical
- Topic: Access to a CFS Specialist
- Replies: 2
- Views: 1957
Re: Access to a CFS Specialist
Dear sparrowhalk The NICE Guidelines for CFS/ME give you an idea of the tests that should be done to inform your diagnosis. These are quoted below: (p140+) The following tests should usually be done: • urinalysis for protein, blood and glucose • full blood count • urea and electrolytes • liver funct...
- Thu Aug 15, 2013 7:45 pm
- Forum: adult medical
- Topic: Vitamin B12 Injections
- Replies: 9
- Views: 4856
Re: Vitamin B12 Injections
This might be helpful: "There is insufficient evidence for the use of supplements – such as vitamin B12, vitamin C, co enzyme Q10, magnesium, NADH (nicotinamide adenine dinucleotide) or multivitamins and minerals – for people with CFS/ME, and therefore they should not be prescribed for treating...
- Thu Aug 15, 2013 2:53 pm
- Forum: physical activity & exercise
- Topic: Why does GET work for some and not for others?
- Replies: 7
- Views: 6505
Re: Why does GET work for some and not for others?
Dear cornwall13 The answer to this question is currently unknown, and I know that this is a question the research community is interested to find out. My hunch (not scientifically founded) is that actually doing the programme has to be a key component - I know it sounds obvious, but unless someone a...
- Thu Aug 15, 2013 2:06 pm
- Forum: physical activity & exercise
- Topic: CFS/ME Sufferer and Sport Training
- Replies: 3
- Views: 5031
Re: CFS/ME Sufferer and Sport Training
Dear rungeek82 Ahhh - the clue is in the name! It sounds like you are having considerable fluctuations in your symptoms which need to be stabilised first, before you build up again. This could mean reducing to gain this stability, then moving up again. There's not a quick answer to this, but yes - y...
- Thu Aug 15, 2013 1:56 pm
- Forum: physical activity & exercise
- Topic: Light box use for energy levels?
- Replies: 4
- Views: 5517
Re: Light box use for energy levels?
Dear soulpoet I can't comment specifically why your GP would have recommended trying a light box, but the rationale I know is to do with the body clock. The body clock describes an (approximately) 24 hour cycle that all human beings go through and is (at least in part) responsible for feelings of wa...
- Thu Aug 15, 2013 1:12 pm
- Forum: physical activity & exercise
- Topic: Baselines (& pacing)
- Replies: 5
- Views: 6310
Re: Baselines (& pacing)
Dear goblinff Firstly, I'm glad to hear you've been linked into your local CFS/ME service, but hear your frustration at it being so far away, having to go through re-testing and it seeming a bit out of reach at the moment. I can't give terribly specific advice but I hope that there's a few things he...
- Thu Aug 15, 2013 11:49 am
- Forum: physical activity & exercise
- Topic: GET - useful or risky?
- Replies: 40
- Views: 26121
Re: GET - useful or risky?
Hi Jessica, I hope you won't mind me asking a question as this thread seems to cover a lot of the questions I have in relation to activity and my child. We are on a GET program for him but he is relapsing every few weeks after continuous increased activity (which is prescribed on the GET program), ...