sleep deprived mum

[Anita1975]

|am new to this site and welcome any parents, carers or specialists to chat to and discuss the issues surrounding my little boy's condition. We have recently been referred to a dermatologist after several visits to the gp asking for a referral. We are currently eliminating dairy products from his diet, using ointments as opposed to creams and surcare for washing. I am at my wits end and am having some time off work as i havent slept properly in months and it was beginning to take its toll on my health PLease help!

[yorkie2703]

Hi Anita and welcome
I know how you feel it took along time for my daughter to be referred, it was like my GP was reluckant to refer her.
How old is your little boy?
I also work full time and find it increasingly hard to do my job as I was so tired.
Have you found any inprovement since you tried your elinination diet?

fiona x

[AnnaB]

Anita, have you seen your dermatologist yet or waiting on the appointment?
anna

[Anita1975]

We saw a dermatologist who prescribed ointments and tubi vests for bed but the follow up was with a derm nurse and the follow up is September. I feel that they aren't really doing anything for us but then is there anything else at his age?
A x

[Marcie Mom]

Don't feel that you're neglected because the next appointment is with nurse Nurses do play a part in managing eczema. And wet wrap is useful and recommended in my local hospitals too. Have interviewed with a major supplier of wet wrap on my blog, extract below
"Marcie Mom: For wet wrapping, it is stated on your website to wear one damp layer of Tubifast, over the moisturizer, followed by another dry layer. This sounds really warm to me, yet I understand that the damp layer can cool and soothe the skin. How does this work? And how long can the child’s skin be kept cool?

Mölnlycke Health Care: Wet wrapping helps to keep skin hydrated and moist, hence reduces inflammation. It also helps to ease the itch and scratch cycle for ezema patients by giving a cooling sensation to the skin that prevents children from further scratching and causing potential injury. You can constantly keep the damp layer moist by spraying water every few hours (depending on the environment / temperature especially in the air-condition room).

Marcie Mom: I’m thinking through some practical questions parents may have, such as (i) how many hours should my child wear Tubifast for it to be effective? (ii) how often should I wash Tubifast? (iii) how do I wash Tubifast, can it be steamed? (iv) will my child get crinkled skin from osmosis? (v) will my child catch a cold like wearing wet clothes? (vi) can my child continue to sleep in air-conditioned room?

Mölnlycke Health Care: (i) Usually Tubifast wet-wrapping is worn during night time. However, please consult a dermatologist who specializes in treating atopic ezema. (ii) No fixed frequency for washing. As and when deem required. (iii) Hand wash tubifast and air-dry it. (iv) So far we have not received such feedback but please consult your dermatologist for further information (v) Tubifast wet-wrapping is to be worn under supervision of a healthcare professional (vi) Please consult your healthcare professional."

Hope above info helps

[worriedmum2410]

Hi Anita, I feel your pain!

My little "princess" just could not sleep through the night, everything irritated her, it was truly the most awful thing that I have ever experienced I tried so many different things, creams, ointments, cotton.. the list can go on all day

I tried a baby grow and a pair of socks from skintoskin over the weekend and I have been amazed so far with the results. She has slept through every night! I'm not counting my chickens quite yet, but I am loving it so far! I have ordered some more, I think she will end up living in the stuff!!

I am not sure about prescription, but I now know this range is NHS approved, so I am happy in that knowledge.

Good luck