please help me find a treatment for my partner
Moderators: talkhealth, Marcie Mom, AnnaB, StephanieJae, Koh Ming Shao
-
little chunk
- Posts: 7
- Joined: Tue May 15, 2012 1:05 am
please help me find a treatment for my partner
hi, i've just found this forum and have found a lot of the discussions really useful so thought i'd post too.
my partner has really severe eczema (ever since he was born) he uses a lot of prescribed steroid creams, hydrocortisone cream and an emollient but these don't work very well. as a child his parents were very careful about what was used, worn and eaten by him and his brother (who also suffers) but now he's older (23) he has basically given up, i think because it is so severe and as things don't magic it away he doesn't see the point in bothering. i really need some help and advice!!
he refuses to use an actual moisturizer so you can only imagine how dry, red, inflamed his skin is, his dr recently prescribed doublebase which he wouldn't use for 3 weeks until i just put it on his feet so he'd see it wasn't that bad. since i've managed to get him to let me put it on him 3 times (over a week ago), he won't do it himself and only lets me do it after i've nagged/ignored him and just put it on! he spends most of the day and night itching, worse at night. he makes himself bleed he scratches so hard, the bed sheets end up covered in blood and skin (actual chunks sometimes) and in the morning he'll be sweaty and smell of blood, its so upsetting to see him like this, i'm up with him a lot in the night and end up trying to restrain him (i don't know if i should do this but i need to do something). on the 3 nights he used the doublebase for me he just looked so peaceful, having no major itching until the following morning.
its also hard to try get him to keep things clean, he rarely puts on creams after washing his hands, he won't use face wash only water and uses very little shower gels/bath stuff (sometimes i sneak in oils if i'm running him a bath), and he doesn't like me shaking the bed sheet out in the morning or changing it a few times a week. he doesn't think theres a link between hygiene and flare ups, recently i was in hospital for a month and he was with me everyday and his skin was very good and me and his sister noticed it was because he wasn't spending a lot of time in his room (dust, dirty, basically a typical boy's room!) or his dog (he is allergic to dogs but ol' bruno is going nowhere!but i won't allow him in our room or near clothes etc), but still he doesn't see a link!
I NEED HELP!!! i feel like i'm fighting a constant battle of wills so any help and advice on:
* moisturisers and other treatments,
*changing his attitude to his eczema
*his itching
*anything anyone can give me!!
as my post covers a few things i've decided to put it in a few categories to get as mush help as i can, so i am sorry if someone ends up reading this a few times!
thank you
my partner has really severe eczema (ever since he was born) he uses a lot of prescribed steroid creams, hydrocortisone cream and an emollient but these don't work very well. as a child his parents were very careful about what was used, worn and eaten by him and his brother (who also suffers) but now he's older (23) he has basically given up, i think because it is so severe and as things don't magic it away he doesn't see the point in bothering. i really need some help and advice!!
he refuses to use an actual moisturizer so you can only imagine how dry, red, inflamed his skin is, his dr recently prescribed doublebase which he wouldn't use for 3 weeks until i just put it on his feet so he'd see it wasn't that bad. since i've managed to get him to let me put it on him 3 times (over a week ago), he won't do it himself and only lets me do it after i've nagged/ignored him and just put it on! he spends most of the day and night itching, worse at night. he makes himself bleed he scratches so hard, the bed sheets end up covered in blood and skin (actual chunks sometimes) and in the morning he'll be sweaty and smell of blood, its so upsetting to see him like this, i'm up with him a lot in the night and end up trying to restrain him (i don't know if i should do this but i need to do something). on the 3 nights he used the doublebase for me he just looked so peaceful, having no major itching until the following morning.
its also hard to try get him to keep things clean, he rarely puts on creams after washing his hands, he won't use face wash only water and uses very little shower gels/bath stuff (sometimes i sneak in oils if i'm running him a bath), and he doesn't like me shaking the bed sheet out in the morning or changing it a few times a week. he doesn't think theres a link between hygiene and flare ups, recently i was in hospital for a month and he was with me everyday and his skin was very good and me and his sister noticed it was because he wasn't spending a lot of time in his room (dust, dirty, basically a typical boy's room!) or his dog (he is allergic to dogs but ol' bruno is going nowhere!but i won't allow him in our room or near clothes etc), but still he doesn't see a link!
I NEED HELP!!! i feel like i'm fighting a constant battle of wills so any help and advice on:
* moisturisers and other treatments,
*changing his attitude to his eczema
*his itching
*anything anyone can give me!!
as my post covers a few things i've decided to put it in a few categories to get as mush help as i can, so i am sorry if someone ends up reading this a few times!
thank you
-
gribble666
- Posts: 1
- Joined: Tue Jun 12, 2012 10:00 pm
Re: please help me find a treatment for my partner
Hi,
After many years of various traditional creams and lotions my eczema became bad enough to prevent me working. At this time, and with a great GP, I was sent to a dermatologist. Unlike previous Hospital visits this guy took a look and decided to forget the normal trial and error approach and jump straight in with Immuno-suppression therapy. I started on cyclosporin and my skin was almost completely clear in just over a month. I then had to take a break as for the long term Azathioprine was preferred. This change resulted in my skin falling apart but over a period of five months my skin is almost completely clear with just a few minor patched on my legs. I still get itchy but not as bad and for the first time in about ten years I am comfortable in my own skin. So it might be an idea to get your partner to push for a dermatology appointment or ask about immuno-suppression therapy. hope this helps.
After many years of various traditional creams and lotions my eczema became bad enough to prevent me working. At this time, and with a great GP, I was sent to a dermatologist. Unlike previous Hospital visits this guy took a look and decided to forget the normal trial and error approach and jump straight in with Immuno-suppression therapy. I started on cyclosporin and my skin was almost completely clear in just over a month. I then had to take a break as for the long term Azathioprine was preferred. This change resulted in my skin falling apart but over a period of five months my skin is almost completely clear with just a few minor patched on my legs. I still get itchy but not as bad and for the first time in about ten years I am comfortable in my own skin. So it might be an idea to get your partner to push for a dermatology appointment or ask about immuno-suppression therapy. hope this helps.
Join with Google
Join with Facebook