At the moment, writing this is the only thing that is stopping me from crying. The basic story is, I had a shower. When I have a shower, I realise just how bad my skin is. It’s quite bad on my face at the moment, it has now spread all over my back in random blotches, my scalp is really bad, my legs are covered in scabs from the incontrollable scratching, even though I’m using the really strong steroid on my arms, they seem to be resisting it, and my whole body just looks disgusting. I HATE having showers or baths because when I get out and cover myself in multiple creams, I have no choice but to look at how bad it is.
I don’t know whether it’s because I had bread the other night on my meal out with the family, or whether it’s just been like that & I haven’t really noticed before. Thankfully it’s the weekend now, so I can stay home and slather myself in cream and just relax and wait for my skin to heal, but it’s still a horrible process.
This is the second day of my Paleo diet without any cheating at all, I’ve been trying to start this diet for weeks but either I don’t have the right food here and have to eat whatever I do have, or I go out somewhere and the choice of food for people on this diet is literally slim to none.
So I guess I’ll just have to stick with the diet and try and ignore my skin. I’ve noticed that if I think about it I stress myself out and I can feel my skin burning because of it, so I try to distract myself. But sometimes it can be difficult when other college students are staring at me like I’m a three legged mutant.
Gosh, this condition can be extremely depressing. I’m hoping more than anything that this diet will work, if it doesn’t I honestly don’t know what I will do. What kind of life can I live when I’m too afraid to leave the house? Not much of one.
People with normal skin have no idea how lucky they are, and how envious we are of them.
Lets just hope the diet helps, bye guys
Brooke x
Dear Brooke
Reading your blog makes me cry, my daughter is 4 years old and suffers in exactly the same way and I have been dealing with the situation for many years now. I have been working in the industry also so have some insight into the treatments available and like you first hand experience combined with the addage that comes with a little one that is not always very compliant! Hang in there, it’s tough – very tough and as a mum who can’t remember the last time I slept through the night (my daughter wakes every night with blood on the sheets and sometimes her fingers are down to the bone) I really do ‘get it’. Anna
on September 27, 2011 at 3:18 pm AnnaHi Anna
on September 27, 2011 at 7:28 pm Brooke_SI’m so sorry that you have to go through this 🙁 it’s a terrible condition and doesn’t just effect one person it effects everyone who cares for them. But please follow my blog to see if this diet works, or maybe try and see if it helps your daughter, because if it does work it could change your lives 🙂 Brooke x
I know exactly how you feel. Been the same way for 15 years, sudden flare up that never went away! I have it on my face too, and whilst up till now I’ve been able to sit in and hide, now my oldest has started playschool and I’ve to bring and collect her. dry red and scaly, plus make up is a bad look……good luck on your diet…I’ll be do happy if it works for you! D x
on September 27, 2011 at 9:30 pm DeirdraHey Deirdra,
on October 3, 2011 at 6:14 pm BrookeIt’s horrible to go through this, believe me I know! The looks are so hard to deal with and you can’t help feeling like some sort of alien! But thanks for the luck, if it works I really hope you’ll give it a go as well because it could potentially change your life!
Brooke x